Artem Chorny

Чорний Артем

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Artem Chorny

Dandy-Walker syndrome

Description

History and appeal from the words of the mother:

Artem Chorny was born in 2017. The birth went smoothly, and during the first months of his life, Artem developed like a normal, healthy child.

At the age of 9 months, after being vaccinated against hepatitis B, the boy had his first seizure in the evening. The family went to the hospital, where this condition was considered a one-time occurrence associated with teething. Artem was discharged home.

However, a week later, the seizure recurred. The child was hospitalized again and underwent a full examination. The results of an MRI and electroencephalography revealed a serious diagnosis: Dandy-Walker syndrome, structural epilepsy, and a posterior cranial fossa cyst (approximately 7 mm).

Since then, Artem has been taking anticonvulsant drugs (in particular, Depakin) and is on continuous medication therapy.

Due to his underlying condition, the child's development was significantly impeded. Artem was unable to walk until the age of three. His family organized rehabilitation on their own, using their own resources: trips to the sea, massages, and therapeutic physical training at home. It was thanks to regular training and rehabilitation that the boy eventually began to walk.

The child's disability was only officially recognized at the age of two and a half, although the need for comprehensive assistance existed much earlier.

Today, Artem needs constant comprehensive rehabilitation, namely:

  • sessions with a speech therapist,
  • work with a special education teacher,
  • sensory integration,
  • therapeutic exercise,
  • therapeutic massage.

Two rehabilitation courses per year are critically insufficient for Artem. To maintain and develop the skills he has acquired, sessions must take place on a regular basis.

The boy's mother takes full care of the child and is unable to work officially. The sole breadwinner of the family is the father, a military serviceman. One salary is not enough to cover daily living expenses, treatment, and regular rehabilitation for the child.

Artem attends school on a short-term basis—only three days a week. On other days, his family tries to enroll him in affordable state and charitable rehabilitation programs so that he does not remain idle.

His parents' biggest dream is for Artem to learn to speak, understand spoken language, and take care of himself in basic ways: eating independently, going to the toilet, and communicating his needs, at least through gestures. This would significantly improve his quality of life and make daily care easier.

Despite all the difficulties, Artem is a very bright, cheerful, and lively child. His sincere eyes give his family hope for improvement every day. His parents understand that their son will never be completely healthy, but they believe that with rehabilitation, he will be able to achieve the highest possible level of independence.

The family is asking for help from caring people and charitable foundations to provide Artem with the necessary rehabilitation and give him a chance for a more fulfilling childhood. Hope in this family does not fade — they knock on every possible door and do everything in their power for the sake of their son's future.

At the moment, we are raising funds to pay for rehabilitation at the “MRC” for a total amount of 25,000 UAH.

 LET'S CREATE GOOD TOGETHER!!!

Documents

The child's documents are hidden to protect personal data and to protect them from fraudsters who enrich themselves on other people's misfortune. Documents are provided upon official request to patrons and donors.

Details of the fund for assistance

Privatbank:

Код 39333086, МФО 300335

Hryvnia IBAN

UA793052990000026000026207697

Euro IBAN

UA793052990000026009006201432

Dollar IBAN

UA483052990000026002006223956

PrivatBank card

5169 3351 0055 9331

Raiffeisen Bank Aval:

Code 39333086, MFO 380805

Hryvnia IBAN

UA723808050000000026009470985

Euro

EUR723808050000000026001470994

Dollar

USD723808050000000026009492576

monobank:

Code 21133352, MFO 322001

Hryvnia IBAN

UA793052990000026000026207697

PayPal

mriyuzhiti.blago@gmail.com

USDT (TRC20)

TT9fWqis9HFTRZqcNGCg3f6P6RH4jaVmQD

Purpose of payment: Charitable assistance

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